Top--all curled up in a ball. Bottom--sweet hand and forearm.This is copied from a note I posted on Facebook because this momma to 7 is tired and battled headaches for the past 4 days, so forgive me...
In response to were we able to see Kara's face...
Yes, her eyes are very small. (I don't know what that means, but she does have them.) She does have a nose, but we couldn't see if there were two nostrils. We saw one for sure. He also said he didn't see a cleft lip, but the actual palate is harder to see. Her head is very flat at the forehead. Her heart looks great and he mentioned he thought one of her kidneys was a little large, but later retracted the statement. So everything else looks good. Amniotic fluid was right on and she was measuring 21 weeks 3 days and I'm 21 weeks 5 days. She is right on. Dr. Richards wants to see me again in 6 weeks because he wants to watch the fluid levels. He says we can see him or Dr. Duff at the Magnolia Park offices and he recommend that we come over to Shands b/c NFL cannot handle what we want to do for her. He called it "more aggressive" treatment. What he considers comfort care is the baby is born and they give her to you and you feed her if she's hungry--otherwise I guess you just let her go. We want a little more intervention than that. He said the babies that he had delivered with this condition didn't live long. I said, "Days?," and he nodded in agreement. Maybe Kara will be the one that will WOW him. Yes, our Father in Heaven has numbered her days and they will be what they will be. I have peace today, but am feeling some sadness... I was also told that even though Shands typically have semi-private rooms, there are some private ones and we would be in a private room. That was reassuring. So I suppose things are falling into place. Dr. Richards was just fine with us today and I was not offended with anything he said. They got us in to see a neonatalogist at the NICU this Friday. The only problem is that Stu has a cold, so I don't know that he can go up there... The appt. is at 1 on Friday.
Also, I am so very thankful that Donnie and Chris Tuttle came and prayed over our baby yesterday. We take great encouragement and I am feeling peace from the prayers that are offered over Kara and for her.
2 comments:
Hi,
I saw you post a comment on my sister, Lauren Tomaschko's website, in regard to baby Jonathan who has Trisomy 13. I decided to click on your link and i am very inspired by your story as well. Please know that you are also in our thoughts and prayers!
That's encouraging news. Even with all that they still don't expect her to have long here on earth? I continue to keep you in my prayers. Praying for a miracle!
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