Kara was all dressed up when we arrived...
Kara's face without tape or tubes!!
Kara doing her trial off the vent...
Mommy loves you SO MUCH! Resting comfy with a new vent.Yesterday, when we arrived at the NICU, Kara was all dressed up in a cute little outfit thanks to her nurse, Melissa! I was so thrilled! It was a big day for her. Dr. Morse pulled her off the vent around noon and they worked with Kara for about 30 minutes. She is able to breathe on her own, but she kept shutting her mouth. Since she has no nasal airway, her heart rate would fall and her O2 saturation would fall also. They tried several things, but she was being stubborn, so they re-intubated her around 12:30 with a slightly larger tube. She seems much better with the larger tube. The next step is to contact Dr. Collins, her ENT, and schedule surgery for a trach. We are waiting to hear when that can be done...
It was a scary day for me. I felt like I had to face the situation that Kara could leave us yesterday. I was very teary and I still am. It is very evident that I am not ready to let my little girl go... She is so funny. She is showing preferences to certain things. She doesn't like the hand splints that the OT made for her. She does calm when I put my hand on her head, pat her belly, and speak in her ear. Please pray that she does not get sick during the rest of her stay in the NICU. She will be safer at home from some bad germs. I am hoping we only have about 2 more weeks and then we adjust our home life to a "new normal." Thank you for ALL the prayers and I will try to keep things updated.
12 comments:
What a sweet girl. She is so beautiful! Praying for you as you adjust to your new normal.
Sweet little Kara Faith is adorable! I loved seeing her without all the tubes. She is beautiful! I love her little chubby cheeks! It just makes me want to kiss them!
We're still praying and eagerly looking forward to hearing that you've taken her home.
She is beautiful! I love the picture without her tubes. And don't be too hard on yourself Mommy, no Mom is ever ready to let her baby go! Just keep loving her with the intensity of any Mommy, and God will give you strength to continue this road, whenever and wherever it takes you. I am praying for you!
I loved seeing little Kara without her tubes! She is so precious and beautiful! I will keep praying for Kara and your whole family as you adjust to your new normal. The Lord will help you with this. "I can do all things through Christ who strengthens me.: Philippians 4:13
so beautiful!!! :) :)
praying... faithfully!
God loves you guys and He holds you in the palm of His hands!! Rejoice and do not fear - He reigns!
hugs and all our love
love ya kara faith!!!
Thank you everyone! I cry as I read your comments...
Wow! Kara Faith is doing so well! I smiled when I saw her in her snazzy pink suit, she looks so lovely!
I love her stuborn character, she's such a fighter :-)
Thinking about you daily!
AM
Praying for you and your family and precious little Kara Bear. Remember nothing is too big for our God!
She is beautiful and we are praying for her. God's blessings upon you all:)
You and your family and Kara are in my thoughts and prayers.
Ms Nancy, she is getting big isn't she? She looks beautiful in her little pink outfit. I hope she can come home with you soon.
thanks for sharing your story with us. my prayers are with you and your family.
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