Little Miss Kara is coming home this Monday! Last Tuesday she was doing so badly that we didn't think we would see this day. Early Wednesday morning she received a transfusion. Cardiology recommends that babies with TOF (Tetrology of Flow) have a hemocrit of 45 or greater. Hers was 31. Also, they added a new heart medication Wednesday afternoon. She is on Lasix and Captopril. Thursday she was a new baby!!!
So yesterday we met with Nature Coast Hospice. They are wonderful and will be walking with us and helping us through this journey with Kara. I believe they are providing 3 full days of nursing care to get us started and so we are comfortable. Also, Pediatric Health Choice came and gave us a 2 hour seminar on all of the equipment we will be using at home and portable for Kara. The portable oxygen tanks only last 1.5 hours, so they gave us 4 and will be delivering more. We'll have a home oxygen mixer, a compressor for the humidifier, a heart/apnea monitor, a portable suction machine. These are her lifeline. Then they tell us the apnea monitor has to stay 6 feet away from any other electronic device... Not sure how that works! We'll see because we don't want it going off all the time. The car seat lady came and we got a car bed for Kara. She cannot sit up in a car seat because of her trach and no head control. It will take up 2 seats in my Suburban.
Please pray for these things:
**that Kara would remain healthy for the next 2 days of stay in the NICU.
**that Stuart and I would have a great peace about caring for her, no anxiety
**that I would not be afraid of anything happening in the truck on the way home from the hospital...
**pray for the people from Hospice and Ped. Health Choice that will be assisting us (They are angels!)
**our children would be calm, healthy, and enjoy their sister very much
We are so thankful for all the prayers of the Faithful people of God! They have held us together and made all the difference for Kara. God has done a work. Every day is a gift with her and we are determined to celebrate her life and enjoy her as long as possible. God bless you!